Help

Help

Dementia

Dementia is a disease which usually affects older people, and because of an ageing population, it is increasingly common. Often, it causes the brain functions to gradually disintegrate, especially the abilities to reason and remember. Alzheimer's is one common type of dementia, but there are others, such as vascular dementias or dementia with Lewy Bodies.

Unfortunately,there is no known cure at present, but the organisations listed here can give help and support to those living with the condition, their families and carers.

  • Wales Dementia Helpline

    Bilingual support to anyone, of any age, who is caring for someone with dementia.

    0808 808 2235

    www.dementiahelpline.org.uk

    • Alzheimer's Society

      A UK wide organisation which can give help and support to those affected by dementia, their families and carers. Details of local support throughout Wales can be found on their website.

       

      0333 150 3456 (in English)

      03300 947 400 (in Welsh)

      www.alzheimers.org.uk
       

      • The Lewy Body Society

        Support and further information about dementia with Lewy Bodies.

        www.lewybody.org

        • Dementia UK

          A specialist dementia nursing charity that is there for the whole family. The nurses, known as Admiral Nurses, provide free help and advice to anyone affected by dementia.

          0800 8886678

          www.dementiauk.org


          • Rare Dementia Support

            Rare Dementia Support (RDS) is a world-leading, UK-based service provided by the UCL Dementia Research Centre (DRC).

            RDS supports people affected by 7 of the rare dementias,including carers and bereaved carers. 

             

            These are: Familial Alzheimer’s disease (FAD), frontotemporal dementia (FTD), familial frontotemporal dementia (fFTD), posterior cortical atrophy (PCA), primary progressive aphasia (PPA), Lewy body dementia (LBD) and Young-onset Alzheimer’s disease (YOAD).

             

            Comprehensive advice and support on their website.

             

            www.raredementiasupport.org

            • The Herbert Protocol

              This scheme is to help keep people who are living with dementia safe, particularly if, as their condition progresses they start to 'walk about'. The Herbert Protocol is designed to assist in locating individuals safe and well should they go missing, and provide reassurance to family and friends that the police have all the information they need to help locate the individual. The Herbert Protocol is a national initiative adopted by the various police forces around Wales and the UK. More information in the link below:

               

              Herbert Protocol

              (relevant to all police forces in Wales, not just South Wales police)
               


               


               

              • DEEP

                The Dementia Engagement and Empowerment Project help to make sure that the voices of those living with the condition are heard withing policy decisions and local services. There are many groups in Wales, more details on the website.

                dementiavoices.org.uk

                • The Brain Charity

                  A charity that promotes neurodiversity and helps anyone with a neurological condition to rebuild their lives and achieve their potential. There is also information and support with different types of dementia.

                   

                  www.thebraincharity.org.uk

                  • Carers Wales

                    An organisation that offers advice and support to carers in Wales, and campaigns on behalf of carers' rights across the country. Contact them about any aspect of caring for others, from where to get financial help to your local services.

                    0808 808 7777

                    www.carersuk.org/wales

                    • Patient.info

                      Extensive, good quality health information usually provided by GPs and nurses during consultation.

                      www.patient.info

                      Information reviewed: November 2025