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Cystic fibrosis

Cystic fibrosis is one of the most common genetic disorders in the UK. The lungs, pancreas, intestines and other organs tend to fill up with sticky mucus, which can cause several problems such as severe breathing difficulties and poor weight gain.

  • Cystic Fibrosis Trust

    One of the main UK organsiations there to help those living with cystic fibrosis, their families or carers. They offer all kinds of practical advice and support on everything about this condition through the website and helpline. They also have expert patient advisers in different parts of the the UK - including Wales - so that people can be helped to find the best possible care.

    0300 373 1000

    www.cysticfibrosis.org.uk

  • Cystic Fibrosis Foundation

    American-based organisation with a comprehensive website giving support and the latest information about the condition.

    www.cff.org

  • Carers Wales

    An organisation that offers advice and support to carers in Wales, and campaigns on behalf of carers' rights across the country. Contact them about any aspect of caring for others, from where to get financial help to your local services.

    www.carersuk.org/wales

  • Contact a Family Wales

    This organisation provides support, advice and information for families with disabled children.

    0808 808 3555

    www.cafamily.org.uk

  • Patient.info

    Extensive, good quality health information usually provided by GPs and nurses during consultation.

    www.patient.info

  • NHS Direct Wales

    NHS Direct Wales is a 24 hour helpline, which can give advice about health and health services across Wales. It is staffed by experienced nurses specially trained to give advice over the phone and provide information about all your local services.

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